We’ve been struggling for weeks now to get this ever-increasing pain under control and been unsuccessful. Yesterday morning, lightening struck again. While I was at HEB filling a new prescription for fentanyl patches, Maggie called and said “I’m in the garage and need to go to the emergency room.” Yikes.
I met Maggie in the garage were she was waiting on the steps, clearly extremely unhappy. A new pain, she told me, had come on suddenly and it was very bad. She was having a great deal of difficulty standing upright, let alone walking.
So, eschewing normal speed limits, we rushed to the ER where they eventually administered a strong pain killer called dilaudid at ever increasing doses. Finally, at 3mgs, Maggie proclaimed that the pain was controlled. Unfortunately, that shot was a one-time trick. We’ve been trying since then to reach that level of comfort again.
So here we are on the 7th floor at Seton again, or “Seven R” as we veterans call it. Maggie’s doing ok. Her pain spikes when she moves so she doesn’t move much. But at least with all the pain killers she’s able to unroll herself from the tight ball she was in when we arrived yesterday. That’s a real improvement.
We are currently waiting on Dr. Loukas to make his rounds. We desperately need to get this pain under control so that we can make the trip to MD Anderson on Monday. It is critical that we get to Houston because that’s the only real hope for stopping this pain, versus masking it with the myriad of drugs. Right now, Maggie can’t hardly walk so I don’t know how the heck we are going to make it down HW290. that’s going to happen but our hope is in someone called a Pain Management Specialist. Dr. Loukas, apparently, is the only one who can make the referral so we wait.
Yes, visitors are fine. We are just hanging tough.