Yet Another Left Turn

It seems like we are going in circles.  The oh-so bothersome side effects from the Vectibix are back, in nearly full force.  The rash and infections have once again overtaken Maggie’s face, ears, neck, back, and chest.  Our joy in watching them magically disappear has been far overshadowed by the frustration caused by their just-as-magical return.

But, all is not lost.  There’s a little sparkle of sunshine we’re hanging on to.  See, now that we’ve seen all this general plague stuff go away so quickly, our situation is a little bit easier to accept knowing that we could banish them again within a day.  Trouble is that we really need this particular treatment to be effective.  And by effective I mean keep the tumors from growing or spreading.  To do that we need to stay on this treatment for a while.  A loooong while.

In response to the sudden return of the plague, her pretty face has been itching badly.  She was up all night last night fighting the urge to scratch.  Her eyelids (yes, eyelids) are dry to the touch and it’s causing micro-wrinkles that have caused Maggie some additional beauty concern.  She spent the better part of yesterday with a cold press stuck to her face and another good part sleeping.  Her energy levels are just not what they used to be.  She’s asleep right now trying to catch up, at least a little, from last night.

We started the Xeloda pills again Friday night.  Seven days on and seven days off is the cycle we’re on.  And this next Friday (the 26th) is a trip back to The Spa for her CPT-11 kick-in-the-pants.  On and on it goes.

Mom Mary and Sister Lori spent many hours here at the house cleaning yesterday.  With our attention, time and energy spread so thinly we’ve just been unable to do a lot of basic stuff, like house cleaning.  The place was a real wreck and those two angels really helped us out a ton.  Thank you so much.

11 thoughts on “Yet Another Left Turn

  1. Hi,
    I know you don’t know me, but you two are in my prayers all the time. Everything you go through is very inspirational to those on the outside looking in. Hang in there! (and thanks for the frequent updates with all the ups & downs lately)

  2. I was once told by my aesthetician that when my face got itchy from a reaction to a spa treatment: get a washrag and soak it in milk and place it on your face for about 10-15 minute intervals. You might try that…just hoping to suggest anything that would make you feel better. Love, prayers, and hugs always

  3. I love you guys more then words can even begin to express and it was a tiny token of how much I love and admire you guys!

    We’ll be back in two weeks!

  4. Dear ones, my heart aches for you. Wish I could be of some kind of help. But all I can do is send all my love and prayers, and hope for the kind of results we’relooking for. xoxoxox

  5. Maggie – hang in there. Lori and I are both glad we could help a little by cleaning. It was good to see you resting so well in your cozy clean bed in your cozy dust-free bedroom. I enjoyed every minute because I could be near you and kiss you on the least tender spot on your face whenever I wanted. I’ll see you for the Spa visit on the 26th. Until then….All My Love XOXOXOX

  6. I know that virtual hugs are nowhere near as good as the real thing. I’m happy to know that you have a lot of people nearby to give you real hugs all through the tough spots. I promise you many big real hugs when I see you next. Until then, my fingers are crossed that this rough patch will be a short one. Lots of love and virtual squeezes. Eli

  7. Lots of love and hugs. Maggie it was so wonderful seeing you Saturday. I know you didn’t have a lot of energy, yet you still came and lit up the room.

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